Facing reality

Today started off ok and ended a little hard. We went to the fetal medicine specialists this morning for another ultrasound to check on Judah's growth and see how he is progressing. He weighs approximately 2 pounds 4 ounces...but he is measuring about 2 weeks ahead of 'schedule' and apparently that is worrisome. I go for my glucose screening to check for gestational diabetes on the 4th of August and if that comes out abnormal then that could be the cause. Micah and a lot of babies born in his family have been big so they said maybe it just runs in the family...but it seems they are trying to find a more concrete thing to pin it on.
They got some pictures in 3D of his cleft for the first time today. When I saw it I didn't really have a reaction...I actually was kind of ok, but as the day went on I found myself getting a little down about it. I guess part of me held out hope that it was misdiagnosed and it would turn out that nothing was wrong at all. The reality of it really started to hit hard...Overall, I guess the appointment was nice and disappointing all at the same time. I attached the pictures to the end of the post...His umbilical cord was next to the right side of his face so it looks a little distorted over there and they said it made the quality of the images a little fuzzy...but you can make out the cleft in his lip on the left side. They still say it is unilateral but the doctor today said it does appear to be complete, meaning it goes all the way into the nose. They still don't know if he has cleft palate as well, and probably won't be able to tell until he is born.
Some good news is that he is turned head down so they said we probably won't have to worry about him being a breech baby!

Phew!

Judah's heart is fine. =]

A different path

I am starting this blog at the insistence of my Aunt Debbie and my mother...I had intended to start a blog for Judah, but never got it off the ground. Now I have a different reason compelling me to write. Originally, when they told me I should 'write it out' I thought it would be a terrible idea for me to journal what I was feeling about Judah and his 'complications', but as the shock has worn off and the grief has turned to acceptance I have realized what good can come from venting and sharing and the feedback and love we can receive from that. And so begins our story...

We found out on June 10th during our 20-week anatomy scan that it appeared Judah has a cleft lip. I am thankful that I am married to Micah because he took the news as a minor roadblock, just one of those things that we will deal with and everything will be fine. I did not handle the news as well. I guess I went through a little period of mourning, grieving the loss of the vision I had for this pregnancy and his birth. I saw things playing out a certain way and it just won't be that way anymore. I will probably never be able to breastfeed him naturally. He will need multiple surgeries and care throughout his life to repair and correct everything. It just all seemed really overwhelming.

We had an appointment with a fetal medicine specialist on June 15th. After a very long ultrasound they concluded that he does indeed have a unilateral cleft, so luckily it is only on one side. It may be possible to have a 3-D ultrasound to see if he has cleft palate as well, but most likely we will have to wait until he is born. The ultrasound will only really show anything if Judah cooperates, and given his behavior and penchant for putting his hands over his face it will not pan out. =] A cleft sometimes throws up flags that there may be other abnormalities or problems, so although everything seems to be fine it is 'standard procedure' to check out his heart, since that is the next most likely problem that occurs with a cleft. All his ultrasounds show that his heart looks fine but we have an appointment soon for a fetal echo cardiogram to take a closer look. We also have an appointment with some cleft specialists in Atlanta to discuss the logistics of when surgery can be performed, what we can expect, etc.

I felt a lot better after seeing the specialists because they did a 3-D ultrasound on him so we really got to see his face. Although you cannot see the cleft on the ultrasound, you can see the rest of his face and he is adorable. I read today somewhere that the child will get a lot of his feelings about his cleft from the parents...that their view and outlook on it will kind of set the tone for the way he sees things, and that really made me think. Yes, it was very upsetting news, Yes, it will be really hard and things will be a lot different now, but he is still our baby. He already has so much personality and we love him so much already. I just hope that everyone can look past his physical anomaly and see the baby we see. We are already halfway through this pregnancy and we have just been taken down a different path, but that's ok. It will still be really hard sometimes, but I feel like I have come to terms with it a little better now and would be able to share. I hope you guys will follow my blog and come on this journey with us.